Home – Living with UC
I am using this blog to tell my story and experience as 49 year old woman diagnosed with ulcerative colitis. I will undergo surgery to remove my large intestine, the lower colon. I hope to share my experience so that others can learn and I can glean from their experiences as well.
Ulcerative Colitis — that’s me, or at least UC has ruled my life the last six weeks or so. You may be familiar with this disease, and here I share just another twisted perspective that may enlighten (or not). For the more then ten years my UC has lain a quiet sleeping giant in the bowels of my body, kept tightly on its leash of remission. Occassionally the ugly beast raised its giant angry head, rattled my innards, shaking me with senselsess in pain and discomfort. Steriods brought put the beast, temporarily back into its deep slumber and I would carry on with my fun life until the next bout.
This Mother’s day 2008 brought me down to the ground as UC beast flared up and roaring fully charging ahead. First, I tried diet management until I could see the doc. He began treatment with increased dose of Prednisone and increasing. After several weeks, I am wracked with pain, losing weight and weakening steadily. Antibiotics help. We start to taper the preds, increase the therapy drug Azathioprine. I am not confident.
June 4, flexible sigmoidoscopy procedure reveals precancerous cells, dysplasia and polyps. Surgery is highly recommended. Like an old car losing its muffler, the doc says “your colon is shot”. This is devastating news for me. Continuing , the flare hangs hold of my innards, my body and the core of my very being. I rock and tremor with pain, tears, depression, anemia and dehydration. It is hard for me to grasp that my my body is not working for me. Sick is a foriegn world to me.
June 18, am admitted to hospital. I remain five days on colon rest and fluids. I learn about illness. My body battles the inflammation, fever, low blood pressures, and high blood sugar levels. I am so tired. I am so sick. However, I am under terrific care of the many well trained experts here at Virgina Mason Hospital in Seattle.
I’m released Sunday, in spite of the fever, and I am try to build up strength in every way to prepare for surgery. I leave hopeful, inspired and ready to tackle the beast that resides within me. I hope to share with you, my family, my friends and those who cope with this condition as well.
I continue with updates