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Sunday, November 2, 2008 ~ 3rd Day Post TakeDown Surgery

Posted in Blog, ulcerative colitis with tags , on November 2, 2008 by bellyluv0sofine

“A thought is energy, and as it is transmitted, it is multiplied. Thoughts can either be positive, negative, or neutral, and they may travel all the way around the world as energy, affecting the way other people, and perhaps other beings, think.  If I thought negatively, then I would put out negative energy, but if I thought positively, I would put out positive energy, expanding the possibilities of what could happen.”  Grayson, by Lynne Cox

I stayed home today playing with my new colon.  Takedown surgery is complete and I am home.  The new colon is working quite well.  There is much less maintenance involved then with “Puffer”.   I have passed gas and had about three bowel movements today.  Yesterday, in the hospital, I started with liquid food and all went right through me.  Trust me, it’s a quite remarkable feeling to drink a cup of warm tea and have it immediately come out the other end (still warm).   I resorted to giant diapers and my thoughts on dealing this were quite sobering.  Good thing for me,  an hour after my first loperamide (Imodium A-D) and a few crackers, everything firmed up just fine.   After three hours I shed the damned diaper. Gawd!  However, I have an entire package (size large) sitting on my bathroom floor that T and I have contemplated on what to do with. Mew suggested saving one for Halloween next year and going as a lady astronaut.  Ha! ha!

I am home from the hospital since late afternoon Saturday.  I am so glad to be out of there.  I tell you hospitals are just for those who are sick.  I am not sick!  Far as I am concerned this is just maintenance.  I am moving a bit slower than normal.  Managing pain with naproxen sodium about every 4 hours.  There is a 3 inch incision diagonally across my abdomen, to the right of my belly button, where my stoma, “Puffer” used to be.  Three stitches loosely close up the “wound drain” and its covered with gauze and tape.  I change the gauze tape after showering.  The point is to keep it open and aired out.  My right oblique muscles  and lower ribs are a bit sore.   I wonder if the surgeon was leaning on my ribs or something while operating?  They are sore.   At night I am taking 5 mg zolpidem for sleep.  I think good quality sleep is conducive to healing and the zolpidem helped me last time  for a couple days after surgery. 

I have tolerated food quite well today.  My abdomen is a bit distended and I get a bit gassy while eating, then it subsides.   Had oatmeal and hot tea for breakfast, leftover Chinese and rice for lunch and dinner.  I am too lazy to cook right now.  I can only eat about one third of a serving before I get full.  But no stomach aches and I feel hungry. 

I’ve been up walking around but no sudden moves or heavy lifting.  I spent the day on the sofa reading and napping on and off. I read a really charming book, Grayson by Lynne Cox.  At seventeen she swam the English Channel and set some kind of world records.  This story is about her experience with a baby gray whale and its return to his mother. Cox literally bumps into the baby while swimming off the shores of a beach early one morning on southern coast of California. I so wanted to be there with her swimming with dolphins, sting rays and this beautiful baby gray whale.  It was the perfect book for today.                

 

Saturday, November 1 ~ Second day post takedown

Posted in Blog, ulcerative colitis with tags on November 1, 2008 by bellyluv0sofine

7:00 am: The doc has cleared me to go home at whatever time I am ready today.   Its too early to call anyone.  I order breakfast instead.  They take me off the saline and the IV drug.  I wasn’t pushing the button anyway.  Right now I’m on anti-inflammatory’s and Tylenol.  They are fine for now.  My mom-in-law will be coming to take me home. 

9:05 am: I have had a shower and I am eating some cream of rice cereal with honey and cream.  The food runs right through me. I need a diaper. Ugh!  The doc has said to take Immodium AD.  I am not in pain but I am uncomfortable with the liquidity of my bowel movements. 

Now in room 1073. I moved from 1075-2 to 1075-1 and now I am in room 1073. I had to give up the window seat.

October 29, Wednesday ~ Eve of Take Down Surgery

Posted in Blog, ulcerative colitis with tags , , on October 29, 2008 by bellyluv0sofine

Today was spent fasting and downing antibiotics. It was not too bad.  I cheated a little.  I had an americano with a bit of cream.  Also had some sorbet with a bit of milk solids.  It’ll be okay.  I drank several cherry flavored gatorades, clear chicken broth and clear coconut milk.  Thank you my dearest D. (my lovely coworker) for the delicous homemade chicken broth.  It is the best I have ever had. 

Surgery’s scheduled at 10:45 am tomorrow morning.  AK spent the day with me.  She did laundry and we crashed on the couch watching “The Holiday” and “Click”, one sentimental, romantic and the second goofy and stupid.  Click is kind of like “Its a Wonderful Life” Adam Sandler style, with all the poop jokes and dum sex pranks imagined.  Both movies, perfect for a day like today. 

I’ve been thinking about saying so long to Puffer.  Having my stoma has been a great experience and I have to admit I am a bit anxious about this next phase.  I know now, that if the takedown fails for whatever reason, I could again live with “Puffer”.  However, the docs say I will come through great, given my past good recovery.  I am relatively young, healthy and strong. So, I continue to think positive.

Wednesday, July 2, 2008 ~ Surgery Date Set

Posted in ulcerative colitis with tags , , on July 2, 2008 by bellyluv0sofine

Surgery will be the morning of Thursday, July 24, with a back-up of August 4. (Due to doc has jury duty and not sure he can get out of it. Ha!) I breathe with relief to finally have a plan. In just a little over four weeks I will have my colon removed.  Before that there is much to do. I will report to work and to meet an important deadline. Then, we are scheduled to have our house painted begining July 7, and we are possibly looking into some badly needed rewiring. And, TA! DA! I will get to dance in the the annual The Mediterranean Fantasy Festival .   (Check out the new page My Belly Dance World.) 

Now my focus is to keep very healthy and get down to 20 mgs of prednisone if possible.  This can be done.  Today I am 32.5 mgs and I feel great.  I cleaned house and did some laundry (after two hour nap) and then I attended my Pilates class (more on that later).  Now am off to practice with the girls for Med Fest. 

Gratitude Thank You, dear Renee’ for the lovely organic salad and homemade hummous you brought over today.  I had this along side a lovely sauteed filet of fresh Tilapia.  It was exquisite.  FYI: I always appreciate good food or good recipes that are low in fat, high in protein and fresh veggies!  Also, if you read this, I really do want to hear from you